The Centre for Data and Knowledge Integration for Health’s (CIDACS) data governance effortshave primarily focused on legal, technical and operational procedures to provide high-quality linkedadministrative data for investigations on social determinants of health and the impact of socialprotection policies in low-income and vulnerable populations throughout Brazil. The Centre is movingtowards an updated data governance model that incorporates the participation of, and consultationand dialogue with, data stakeholders, including groups covered by our linked data. To this end, thispaper presents our procedures and challenges, outlining relevant considerations based on a focusedliterature review that aims to support the inclusion of societal participation in our revised datagovernance approach, which should be considered an ongoing process.
Autoria: Bethânia de Araújo Almeida, Roberto Carreiro, Maíra Lima de Souza, Mauricio Barreto.
Periódico: Internacional Journal of Population Data Science
Ano de publicação: 2024